Satisfaction with hemodialysis health services. The accompanying person's perspective

Abstract

Introduction: Chronic kidney disease (CKD) is one of the leading non-communicable chronic diseases, affecting patients' quality of life and placing a significant burden on their caregivers. This study addressed the subjective dimension of satisfaction with healthcare, focusing on caregivers of hemodialysis patients, recognizing the crucial role of support networks and the need for comprehensive care that transcends the clinical aspect. Materials and methods: A qualitative study with an ethnomethodological approach was conducted using a multiple case study. A non-probability sample of 12 caregivers from the Nephrology Department of the "Juan Bruno Zayas" Hospital in Santiago de Cuba was used. Results: The findings revealed considerable emotional strain among the caregivers, whose reasons for providing support are primarily based on affective bonds. Insufficient preventive care was identified at the primary care level, leading to misinformation and unfavorable expectations regarding treatment. Discussion: The need for comprehensive care that includes the psychosocial well-being of caregivers was demonstrated, with an emphasis on clear communication and support programs. Conclusions: It is concluded that it is urgent to adopt a systemic and integrative approach to chronic kidney disease (CKD) that strengthens support for caregivers as crucial agents in care. Coordinated action by the multidisciplinary team and greater social awareness are required to achieve fairer, more accessible, and quality-of-life healthcare for patients and their families.